Quick Stat: Prevalence
According to several studies published since 2006, it’s estimated that about 4% of the U.S. population has some form of gastroparesis. For comparison, Celiac Disease and Crohn’s Disease are each estimated to affect about 1% of the population.
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6 Responses to “Quick Stat: Prevalence”
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I’ve been following your blog for quite a while now. You’ve compiled such a great resource for people dealing with GP, and I can’t thank you enough! My son, age 2 1/2, has idiopathic GP, and we’re really struggling with it. None of the medicines have worked, and a feeding tube is looking imminent at the moment. He is an otherwise healthy, normal, and high-spirited little boy, but because of his age, he’s not really able to tell us much about how he is feeling. It is so reassuring to read an adult’s perspective on what GP is like (though I know it is different for everyone.)
Given your statistic today, I am truly amazed by the LACK of information out there about GP, as I’m sure you and all the other GP suffers are too. Do you happen to have any statistics about how many of those with GP are children? That’s one statistic I haven’t been able to find. There is even LESS info available about treatment options for children with GP …believe me, I’ve looked.
Hi, Cara -
My heart goes out to you and your little boy. I cannot imagine what it must be like to deal with this disease as a child (or their parent). Has he had GP from birth?
I agree, the lack of information, support, and research for gastroparesis is astounding — especially considering there are so many of us suffering. Unfortunately, I haven’t seen any statistics regarding the prevalence of GP among children. The only thing I’ve come across is that in pediatric gastroparesis, 60% of the cases are idiopathic (compared to about 35% idiopathic in adults).
I do know that there is an organization out of Buffalo, NY called Pediatric Digestion and Motility Disorders Society, Inc. (PEDS). I’m not sure if you’re familiar with them, but here’s a link to their Facebook page.
Best wishes to you and your little one! I’ll keep him in my thoughts.
Crystal
[...] was paid to Celiac Disease and IBD, for example, there was nary a mention of gastroparesis (even though GP affects millions more people). For the most part, I’m guessing this is because there are clear-cut ways to define, [...]
[...] that. Public knowledge is sorely lacking. Especially when you consider that there are at least three times as many people with gastroparesis as with Celiac disease, a condition with a significantly higher [...]
Hi Cara So sorry to hear about your little guy having GP. I myself was diagnosied in 2008 at 52 . I belong to a yahoo group whose members have children with GP. They may be able to give you some answers. Their email address is gastroparesis@yahoogroups.com . There are about 4000 members but not all of them active,. There is about 8 million people in the US alone who have G and sadly there are quite a few children with this diease. I know the mother’s at that email address would gladly email you with info to help your little man. Blessings Rae from Lockport NY
[...] gastroparesis is thought to affect about 4% of Americans, FGIMDs in general are estimated to affect about 15% of the total population, making [...]