FAQ: Why am I gaining weight with gastroparesis? (Audio Post)

Posted in: FAQ ♦ Thursday, October 7th, 2010, 6:49 pm ♦ 21 Comments

Most people assume that gastroparesis patients lose a lot of weight due to their symptoms. In fact, many doctors still judge the severity of a patient’s digestive distress by the number on the scale. But guess what? It’s simply not always the case. I’ve worked with a number of clients who were struggling with weight gain due to gastroparesis. There are several explanations for why this might happen. Click below to listen to me talk about GP & weight gain or right click and choose “Save Link As…” to download the file.

FAQ:Weight Gain and Gastroparesis

 


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21 Responses to “FAQ: Why am I gaining weight with gastroparesis? (Audio Post)”

  1. Posted by: Sharon
    October 26th, 2010 at 6:37 pm

    Hello,

    I clicked on the link but never got the “Save Link As” – thus couldn’t open it. I’m very interested in this topic

    Thank you!

  2. Posted by: Crystal
    October 26th, 2010 at 7:19 pm

    Hi, Sharon. Just emailed the file to you. Hope it helps!

    Warmly,
    Crystal

  3. Posted by: Chris
    November 3rd, 2010 at 3:48 pm

    Thanks so much for this podcast Sharon, I kept thinking my GP could not be that severe despite my doctors warnings, since I gain weight despite being on a very restricted diet and walking 2 miles a day. I have been tested for low thyroid several times (I have many symptoms of it) but always get a negative. However I have also been a chronic yo yo dieter sooooo, guessing thats a big culprit in this case.

    Thanks again, glad I found your site!

  4. Posted by: Chris
    November 3rd, 2010 at 3:52 pm

    PS…sorry I meant to say Crystal, sorry for the typo :)

  5. Posted by: Crystal
    November 11th, 2010 at 4:53 pm

    Hi, Chris. Thanks for the comment and I’m glad you found the site, too. The bias against GPers who at — or even above — a “normal” weight really frustrates me. There’s so much more to weight than just calories in, calories out and, in my opinion, it isn’t a very good reflection of the severity of someone’s GP/DTP symptoms. If your thyroid is normal, then your dieting history probably has a great deal to do with it. Do you have a doctor who takes your symptoms seriously and is adequately treating your condition?

    Warmly,
    Crystal

  6. Posted by: Chris
    November 12th, 2010 at 1:16 am

    Hi Crystal,

    Yes my doctor took my GP seriously, I just never did because I wasn’t losing weight. Tho my doctor would make comments stating that I seemed to be doing good since I maintained my weight, but he did impress upon me that I should still take my GP seriously. I found out the hard way one morning how seriously I should take it when I woke up very sick, thought I had ta terrible flu, but the “flu” responded almost instantly when I took my Enrythromycin, by the 3rd pill I was cured of that “flu” and felt fine. I have since gone on an almost total liquid diet. However I’m having trouble with that so I’m still trying to work things out :)

    -Chris

  7. Posted by: Sharon
    December 1st, 2010 at 1:46 am

    My daughter sent me this site and I am so glad!. I have had this condition I am sure close to 2 yrs, but my dr would not test me for this because I am overweight. He told me people with this condition are always thin. I had the gastric emptying scan and they could not do the test because even with the reglan my food sat there and did not move (I finally found a GI dr that would listen to me) This is going to be a major lifestyle change for me, so glad I found this site, but as you see you can still be overweight and have severe gastroparesis as I did.

  8. Posted by: Crystal
    December 2nd, 2010 at 1:18 pm

    Hi, Sharon. I’m so sorry to hear that the first doctor dismissed you due to weight. I am glad that you finally found a doctor who would take you seriously, however. Have you been diagnosed as idiopathic or do they know the cause of the delayed emptying? It is most definitely a lifestyle change. If you haven’t done so, I’d recommend checking out my eBook Eating for Gastroparesis. It’s a really good introduction to the dietary modifications that can help to alleviate symptoms and enhance nutrition. Glad you found us!

    Warmly,
    Crystal

  9. Posted by: Sharon
    December 3rd, 2010 at 2:28 pm

    Already bought the book the first day I read about it on your website. Excellent and answered a lot of questions that I had. Yes, this is going to be a lifestyle change, but I am so glad I found your site. Talked with a NP at the hospital, I am a nurse., she works for a GI group and she told me that they have seen an incredible rise in the last few years of ideopathic gastroparesis being found. Mine has been diagnosed as ideopathic but I am still going to insist my MD recheck my thyroid and my blood sugar (HgAIC) to see if my sugars have been under control for the last few months. Thanks again for the response Sharon

  10. January 11th, 2011 at 5:53 pm

    [...] FAQ: Why am I gaining weight with Gastroparesis?: ¬†Here’s another one that surprised me. ¬†While I’ve helped quite a few GPers [...]

  11. Posted by: jinks
    January 27th, 2011 at 7:33 pm

    I am so happy that I found this site. I to have Gastro & I am overweight. One of my main problems is I am a Type 1 diabetic (for 51 ys) & I have to do my blood sugard every 3 hrs. because I never know when my food will be digested. I had the test done (I forgot the name) where you swallow scrambeled eggs & they follow it for 3 hrs. My gastric empting time was, as the said “off the chart”. It turned out to be 11 hrs. Have any of you had a result this long of a time? I haven’t read all the posts yet but I am. Would anyone care to comment on this? Thank you for reading this anyway.
    jinks

  12. Posted by: Sharon
    January 27th, 2011 at 8:57 pm

    Jinks- my gastric emptying scan (the scrambled eggs test) was “off the charts also” After 120 minutes they gave me an injection of Reglan and then it started to move a little. My doctor told me that my food was sitting in my stomach for 2 days! I had nausea, constant heartburn and regurgitation into my throat and mouth all the time. I had about 5 doctors dismiss these symptoms because I was overweight, but finally someone listened and ordered the right test. Since going on a basically liquid diet and taking the reglan, the symptoms have almost vanished and I lost 9 lbs the first the month. I feel so much better and actually eating more healthy as I am juicing things and drinking V8 and fusion drinks and getting my vegetables that way. Good luck to you.

  13. Posted by: Debbie
    January 29th, 2011 at 2:19 am

    Crystal, thank you, thank you, thank you! I was diagnosed
    with GP within the past year and thought, even though the gastric
    emptying tests showed significant delay and all my symptoms pointed
    towards it, I thought that perhaps the doctors were mistaken since
    I’ve maintained my weight for the past few years. Everywhere on the
    net suggests people with GP have trouble maintaining their weight
    and are very underweight. I’m glad to know that this isn’t always
    the case. I am scheduled for surgery for a gastrice neurostimulator
    in March and was having second thoughts. This makes my decision a
    lot easier. I’m now on my way to visit your site.

  14. Posted by: Crystal
    January 29th, 2011 at 3:25 pm

    Hi, Debbie! So glad you found the site. It’s an unfortunate misconception that everyone with GP is underweight and I think it prevents some GPers from seeking or being offered adequate care. I hope that the gastric neurostimulator brings you relief!! Warmly, Crystal

  15. Posted by: Crystal
    January 29th, 2011 at 3:41 pm

    Hi, Jinks. Welcome; I hope you continue to find helpful information on the site!

    As you might expect, the results of the gastric emptying scan vary greatly from person to person. I’m assuming that they didn’t actually keep you for 11 hours, but extrapolated the emptying time based on the results from the 3 hour scan? That would mean you probably had about 25% emptied at 3 hours, which is certainly a significant delay.

    As far as the weight, because of the erratic blood sugar, coupled with the fact that you’re probably not consuming enough calories, it makes sense. Do you have a doctor who you are comfortable with and is knowledgeable in the treatment of diabetic gastroparesis? Are you comfortable managing your diet and nutrition? If you have questions about diet, you might want to download the Eating for GP eBook for some additional guidance.

    Warmly,
    Crystal

  16. Posted by: louise lagerman
    January 10th, 2013 at 8:48 pm

    Thank you
    My 24 year old son suffers with Gastroparesis
    i just orderd your book.

  17. Posted by: Jennifer Hunter
    January 16th, 2013 at 3:33 am

    I too have been diagnosed with Gastroparesis approx a year ago. I was also diagnosed with Crohns a few years. Although they caught the Crohns early and since then I have had trouble with losing weight. I (like everyone else) have been trying to do anything and everything to lose the weight but nothing seems to work. My G.I doc just tells me it comes with the disease or diseases. I have never been this heavy and absolutely cant stand it anymore. I’m at my wits end!!
    Please Help!

  18. Posted by: Shannon
    January 16th, 2013 at 2:54 pm

    I was diagnosed by my GI with GP in 2010 and I dropped over 20 pounds and looked deadly ill. Now I am having the opposite effect. I now have gained over 30 pounds. I have been trying to eat healthy without having a flare up. Is there a list of foods that can help you with a diet to possibly lose some weight and then maintain it? I probably eat 1-2 times a day as if i ate anymore I would pop! I have had my primary care check my thyroid and it is normal. I am not sure what to do as I am blowing up more and more like a balloon.

  19. Posted by: jinks
    January 24th, 2013 at 11:34 am

    I didn’t realize i had not posted since 2011, but I found a GI Dr. that put me on a medication noot approved by the FDA in USA called DOMPERIDOME which helped with my continuous vomiting. I have therefore been able to gain weight. They were going to have to insert a tube into my stomach to hhelp me gain weight. I know you are all talking about gaing weight but I was throwing up so much I couldn’t gain weight. The 1st 6 mos. aftter dx. I went from 131 pds. to 103 lbs. I was happy but my MD & my husband wasn’t happy. Through the computer average my GP was 11 hrs. Thanks for reading thiis.
    Jinks

  20. Posted by: Rebecca
    March 12th, 2013 at 12:12 am

    I was diagnosed w/ GP a few years ago. I was (and still am overweight) but I sort of just went about my life and did nothing about it, never changing my diet. Now, when I am finally ready to lose weight, I am finding it very difficult. I’ve been eating pretty much only protein for the last 3 weeks, cutting out all carbs and sugar and nothing is really happening. I figured that being so heavy the weight would just fall off especially in the beginning of my diet but if I’m losing weight it is totally unnoticeable. Does GP have an effect on you being able to lose weight and if so what do I do about it? What else can I do at this point? I’m only eating protein as it is

    Rebecca

  21. Posted by: Bud Bailey
    July 21st, 2013 at 1:06 pm

    I’ve been diagnosed with gastroparesis, I’m an 83 year old male, and I want to know if this is what’s caused me to develop a large abdomen. I go to the Fitness Center 4X a week, walk the treadmill and do other machines but my belly is bigger than ever.
    Can you e-mail me a copy of your video?
    Thank you

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