http://livingwithgastroparesis.com/gastroparesis-survey-updated-results/ By Crystal Saltrelli - GP Patient, Advocate & Health Coach Sat, 04 Feb 2012 18:58:38 +0000 hourly 1 http://wordpress.org/?v=3.2.1 http://livingwithgastroparesis.com/gastroparesis-survey-updated-results/comment-page-1/#comment-432 Tina Thu, 24 Jun 2010 17:12:53 +0000 http://livingwithgastroparesis.com/?p=787#comment-432 Pain and malnourishment are my 2 biggest problems. I had bad reactions to Reglan and now take Domperidone. It initially helped me be able to eat things like cottage cheese, rice pudding, and polenta, but my gp has worsened over the past year and I'm on the verge of needing a j-tube. I have significant muscle wasting, now use a wheelchair, and have developed neuropathy in my legs. I have idiopathic gp and live on Enlive or Resource Breeze, eggbeaters, rice crackers, cream of rice with almond milk, mini pretzels, and some Beech-nut jars like butternut squash, chicken, and carrots. I'm seeing a pain psychologist for visualization, breathing, biofeedback, hypnosis, and mindfulness, all of which help a bit with the pain. I was just started on 10 mg amitriptyline. In the fall they will add gabapentin and see if that helps with the pain. I wish there were more treatment options of the actual disease itself, as opposed to just managing the symptoms with medications used for other illnesses. Pain and malnourishment are my 2 biggest problems. I had bad reactions to Reglan and now take Domperidone. It initially helped me be able to eat things like cottage cheese, rice pudding, and polenta, but my gp has worsened over the past year and I’m on the verge of needing a j-tube. I have significant muscle wasting, now use a wheelchair, and have developed neuropathy in my legs.
I have idiopathic gp and live on Enlive or Resource Breeze, eggbeaters, rice crackers, cream of rice with almond milk, mini pretzels, and some Beech-nut jars like butternut squash, chicken, and carrots. I’m seeing a pain psychologist for visualization, breathing, biofeedback, hypnosis, and mindfulness, all of which help a bit with the pain. I was just started on 10 mg amitriptyline. In the fall they will add gabapentin and see if that helps with the pain.
I wish there were more treatment options of the actual disease itself, as opposed to just managing the symptoms with medications used for other illnesses.

]]> http://livingwithgastroparesis.com/gastroparesis-survey-updated-results/comment-page-1/#comment-430 Sue K. Thu, 24 Jun 2010 01:55:44 +0000 http://livingwithgastroparesis.com/?p=787#comment-430 My husband has been diagnosed with gastroparesis. He is a type II diabetic. His discomfort primarily is the bloating and discomfort with the food not moving out of his stomach and not being able to have a bowel movement. We have made an appointment with a Doctor at the Shadyside Hospital in Pittsburgh, PA to seek help and to maybe have the gastric neurostimulator inserted. We are scared, but we are definitely scared of taking another pill, because of all the medications for diabetes and now he is insulin dependent also. I read your site and found it very interesting and helpful to hear from others and then to read your survey results. Do you have any advice about having regular bowel movements? Thanks. Sue K. My husband has been diagnosed with gastroparesis. He is a type II diabetic. His discomfort primarily is the bloating and discomfort with the food not moving out of his stomach and not being able to have a bowel movement. We have made an appointment with a Doctor at the Shadyside Hospital in Pittsburgh, PA to seek help and to maybe have the gastric neurostimulator inserted. We are scared, but we are definitely scared of taking another pill, because of all the medications for diabetes and now he is insulin dependent also. I read your site and found it very interesting and helpful to hear from others and then to read your survey results. Do you have any advice about having regular bowel movements? Thanks. Sue K.

]]> http://livingwithgastroparesis.com/gastroparesis-survey-updated-results/comment-page-1/#comment-427 Crystal Wed, 23 Jun 2010 18:26:22 +0000 http://livingwithgastroparesis.com/?p=787#comment-427 You're welcome! Thanks so much for participating in the survey. You’re welcome! Thanks so much for participating in the survey.

]]> http://livingwithgastroparesis.com/gastroparesis-survey-updated-results/comment-page-1/#comment-425 MK Wed, 23 Jun 2010 18:17:00 +0000 http://livingwithgastroparesis.com/?p=787#comment-425 Thank you for the survey results (I participated!) and the travel tips are greatly appreciated. Thank you for the survey results (I participated!) and the travel tips are greatly appreciated.

]]>