Finding a Gastroparesis Specialist
The premise behind this website and my work as a health counselor is that those of us with gastroparesis have to be our own advocates. But that doesn’t mean that we should do it alone. Innfact, having a knowledgable specialist who is compassionate and willing to help you explore your treatment options is a vital part of a good gastroparesis management plan.
A few months ago, I posted a survey so that we could help each other navigate the often frustrating task of finding a good doctor. Click on the link below to access the results — over 3 dozen doctors around the country who have been recommended by other GPers.
{Please note: I am not personally recommending or endorsing any of these physicians. This list is based solely on feedback received via the survey.}
Doctors Recommended by Other GPers
Here are two additional resources, which may be helpful to those looking for a specialist:
- American Neurogastroenterology and Motility Society’s Registry of GI Motility Laboratories
- University of List of GP Experts (2009)
UPDATE: I’ve been notified that some of the info on these lists is out of date. Some docs, including McCallum and Abell have moved. I’ll be posting updates on Monday, along with any additions that are left in the comment section.
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12 Responses to “Finding a Gastroparesis Specialist”
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[...] This post was mentioned on Twitter by Crystal,
G-PACT. G-PACT said: Patients are often the best advisers in
choosing a good, knowledgeable, and caring physician. Crystal
Saltrelli… http://fb.me/EpWyvPWt [...]
Great list, Crystal! The only thing I would mention is that Dr. Patterson is now at Swedish Medical Center, too, not at Virginia Mason anymore.
We use Dr. Christopher Jolley at Shands at the University
of Florida in Gainesville, FL. He is a Pedicatric Gastoenterologist
that goes above and beyond with his patients. We have found him to
be extremely compassionate with our daughter. Dr. Jolley also does
work with the Gastric Stimulator and will refer out if
needed.
Thanks, Libby! I’ll keep track of any updates and repost
the info.
Thanks, Kelly! So sorry that your daughter is dealing with GP, but I’m glad you’ve found a good doc. I’ll add Dr. Jolley to the updated list.
I hope others share their recommendations, as well!
Crystal, The doctors at the UNC Center for Functional GI
and Motility Disorders, Particularly Nicolas Shaheen and Yehuda
Ringel, are excellent in treating gastroparesis and chronic
intestinal pseudo-obstruction. They go above and beyond and are
extremely compassionate, have great bedside manners, will spend
extreme amounts of time with their patients to get to the bottom of
problems, and are willing to try creative treatments. I’m sorry
that I missed answering your survey. Aliza
I am a five year survivor of pancreatic cancer. I have had
surgery followed by chemotherapy and radiation in 2006. There was
reoccurrence of a tumor outside the stomach wall in 2009 which was
followed by more chemotherapy. I had a 5 month break and it
reoccured in 2010. I became the first patient with p.c. To have
proton therapy and so far things look promising. I have a pet/scan
again next week. But now I have been diagnosed with gastoparesis
and have lost 12 pounds in two months. I also have two duodenal
stents and bile stents that get changed every 3 months. The gastro
dr. Has suggested a j tube but I have a history of infection and
don’t want to go that route. I can drink ensure and I can have some
soft foods but right now it’s trial and error. I really need some
suggestions. An upper G.I. Showed a very tight duodenum but no
other obstructions. The pain I get comes in spasms, like a
tightening of my esophagus and belching. But I can go several days
with no pain. Is there a nutritionalist that can help me or a
motility doctor? Looking forward to your response. I feel greatful
this does not appear to be cancer related. Pia
Hello everyone, i am currently living in Oklahoma cause the the Army sent us here. I have not seen a GI to adjust the settings on my stimulator for about 3yrs not. 1, cause Tricare doesn’t want to pay and 2. The closest one is Dallas. Just wondering if anyone know of a good GI in the OKC area that i can check out. It looks like if things finally go our way, the Army will be sending us to Ft. Bliss(El Paso,Tx) and there are 2 dr’s that do stimulators there and that would be awesome. My team of drs i had there before moving to OK finally had my body in control or the best it could get. Well, thank you for advance to anyone that answers this:)
My daughter is 16 years old and has been diagnosed with gastroparesis. Has anyone had experience with a pediatric GI doctor?
Hi, Debra. Not sure where you live, but here are three of the best pediatric GI motility specialists that I’ve heard of:
Dr. Carlo DiLorenzo at Nationwide Children’s Hospital in Columbus, OH
Dr. Alex Rodriquez at Children’s Hospital in Boston
Dr. Alex Flores at Floating Hospital for Children at Tufts in Boston
Hope that helps!
Warmly,
Crystal
My friend has been diagnosed with gastroparthesis and I see from these postings there are several pediatric specialists but does anyone know of a specialist for adults?
Karen, there are actually many more adult motility specialists than pediatric ones (not that there are many of either!). The lists that I linked to in this post are primarily doctors for adults, so be sure to check those out. If you let us know where you’re located, I might be able to make a recommendation.