I’ve seen a number of statements lately from idiopathic gastroparesis patients expressing sadness/anger/frustration that they will “never” have, do, eat or be such-and-such ever again. While I certainly understand and respect that everyone’s experience is different, this always strikes me as odd since I tend not to think about the disorder in such finite terms. I suppose for some people the fact that so little is known about “idiopathic gastroparesis” seems like a life sentence — to me, it’s quite the opposite.
I look at all of those unknowns and I see opportunities. I think about the medical and scientific breakthroughs that have come for other diseases in the recent past and I can’t help but feel optimistic that similar advancements are inevitable for those of us with gastric motility disorders. It’s true that right now very little is known about the enteric nervous system, the likely root of the problem for many of us. However, there are physicians and researchers dedicating their careers to studying the ENS and it’s dysfunction. I’m certain that breakthroughs are eminent. Maybe not tomorrow or next month, but certainly in my lifetime.
Until I know what caused my digestive system to stop working, I don’t see any reason to believe that it can’t be fixed. Some may think that’s idealistic, but given the facts (or lack there of) I actually thinks it’s quite pragmatic. In the meantime, I’ll continue to do my best to live (well!) with gastroparesis and, hopefully, help others do the same.
**In no way is this meant as a judgement against others. It’s just a different perspective to consider.**