Tags: FAQ Friday, Video
Thank you so much everyday I fight back with GP I still can’t seem to accept it but your video is inspirational it opened new doors for me. I’m 16 and new to GP in the UK I feel so alone I didn’t know what it was but I follow you on twitter @x_Haffie_x I’m tube fed still I haven’t eaten since December 2010 please pray for me it’s reassuring to know that you can eat and that oneday I’ll be able to eat but at this moment I have GP.
Again thank you so much would love to stay in contact via Twitter.
Thank you for your video. I am still not where I want to be with dealing with my gastroparesis but I have come very far in the few months I have been dealing with this condition. I read your book and I am doing some research on my own on ways that I can manage my symptoms and I have come to realize there are some good that has come from this “bad.” I am more aware of my health, my body and I am taking better care of myself then before I was diagnosed. I certainly have bad days and some times I feel that my condition makes my decisions for me but I am trying my hardest to live my life as normally as I can. Having a dialogue and having this blog to visit everyday really helps me. I am truly grateful for the support that comes through this blog.
Great point, Crystal. It’s so true that we have to constantly remind ourselves to accept our current situation. It’s so easy to slip into negative thinking on a bad day. I also try to remind myself that things could be worse, and I’m still much more fortunate than so many other people in the world. When I think about those dealing with natural disasters, financial hardships or diseases much worse than mine, it really puts not being able to drink a frappuccino in perspective.
Will there ever be a real cure for us?
Yes, I believe there will be.
Hi Crystal, I am new here and just bought your book. WOW this post rings so very true!! I have been fighting gastroparesis with body, mind and soul lately, but somehow I have luckily passed through the five stages of grief and my denial has turned to acceptance. I truly wish this for all people dealing with a chronic disease. I can now channel all of the energy (and money!) that I put into finding *the cure* into coping. I am looking forward to coping with gastroparesis and enjoying my free time!
Hi Crystal, I was diagnosed last week with Gastroparesis after 5 months of abdominal pain and I am having a very difficult time getting through the anger, sadness and emotional roller coster. 7 months ago I was traveling through Europe, got engaged and was happier than I ever thought I could be in life. And then out of nowhere I began to get sick. I tested positive for h pylori and was treated with PrevPac in December 2012 (an intense series of antibiotics and PPI’s for 14 days). I assumed that the symptoms were from h pylori, which I thought I picked up in Europe a few months prior, and that they would go away with treatment. Well, after the treatment I began to have symptoms associated with Gastroparesis…. the impossibly painful feeling of constantly being too full, extreme nausea, burning from GERD, and weight loss (I currently weigh 97 lbs and am 5’5″). I am having a very difficult time accepting all of this and am overwhelmed with emotions of confusion, fear, sadness, anger… you name it. My wedding is in 6 months and everyday I am angry that I am dealing with this rather than getting the chance to be happy about my upcoming wedding like “normal” women my age. Everything you said in your video about “this isn’t fair” or “I would be happy if I didnt have this” are things that I struggle with everyday. I don’t know how to move on past this point… I don’t know how to be happy on my wedding day… I cry everyday and it is really taking a toll on my life, relationship and career.
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